LUCID Workshops

Professor Hilary L Bekker (PhD), Chair in Medical Decision Making, Leeds Institute of Health Sciences

Dr Ana Manzano, Leeds Social Sciences institute, University of Leeds, UK

Background

Using patient decision aids (PtDA) enables services support people to make informed, value-based decisions about healthcare https://jamanetwork.com/journals/jama/fullarticle/2648613. PtDAs designed with reference to clinical evidence, patient experience, decision science, and decision-problem specific evidence.

Aims 

To provide a framework to support PtDA developers identify the research needed to design, and evaluate, their PtDA to meet their clinical and patient need.

Content

Overview of, and explanation for using, the International Patient Decision Aid (IPDAS) collaboration resources. Examples of primary research carried out to inform PtDA content and structure about treatment decisions for long-term conditions (e.g. RRMS, CKD, orthodontics), such as decision maps, value-elicitation, risk presentation, narratives, and decision-attribute tables. Pointers for evaluation and impact in practice. See examples https://kidneyresearchuk.org/kidney-health-information/; https://crimson.leeds.ac.uk/wp-content/uploads/sites/51/2019/12/UOL169_CRIMSON-A4-Brochure_WEB.pdf

Target Group

(Attendees assumed to have a basic knowledge of or interest in intervention development but may have no prior knowledge of the workshop topic)

Any health professional, quality improvement manager, health services research, applied social scientist wanting a snapshot to patient decision aid interventions their use to support personalised care, patient engagement and shared decision making.