Inclusive Research

Experience-based co-design of a pharmacy-based active case finding service for colorectal cancer in underserved communities (DETECT-CRC) 

Bowel cancer is under-detected in underserved areas, leading to inequalities of outcomes. Community pharmacies are accessible. We worked with community members, community pharmacists and others, to design an active case finding service that would speed up diagnosis.

More information:
Yorkshire Cancer Research DETECT-CRC summary
DETECT-CRC publication.

Improving the quality and safety of medicines use for older people in underserved communities

This NIHR Yorkshire and Humber Patient Safety Research Collaboration (PSRC)- funded study co-designed patient-centred resources for medication reviews. The resources were translated into multiple languages along with audio versions in each language, and implemented in a national Health Innovation Network programme to improve the quality and safety of medicines use.

More information:
Resources for medication reviews
Medication reviews project news report
PSRC reducing problematic pharmacy projects.

Optimising Structured Medication Reviews for Older People with Severe Frailty and Care Home Residents to Reduce Overprescribing and Associated Inequalities

Older people often take multiple medications, which can cause harmful side effects. Care home residents and older people from minoritised ethnic groups are more likely to take multiple medications. This NIHR funded project aims to improve quality and accessibility of Structured Medication Reviews (SMRs) to reduce overprescribing for older people with severe frailty. Taking intersectionality as our conceptual framework, we combine analysis of routinely collected data with in-depth qualitative work to inform co-production of a training package for pharmacists and guidance for commissioners to ensure equitable access to and engagement with SMRs for diverse groups of older people with frailty.

More information:
Optimising Structured Medication Reviews webpage.

Optimising transient ischaemic attack (TIA) pathways to reduce ethnicity-based inequalities (EQUITY-TIA)

EQUITY-TIA is a 3-year NIHR-funded project led by Dr Elizabeth Teale, which aims to explore ethnicity-based inequalities in access to and delivery of services for people who have had a TIA (mini-stroke). We are using routinely-collected NHS data to identify whether and where there may be inequities in access to care and outcomes, and qualitative methods (observations and interviews) to explore experiences of the TIA pathway from the perspectives of patients, carers and staff. Alongside patients, providers and other stakeholders, we will then coproduce culturally appropriate materials and guidance detailing essential elements of more equitable care.

More information:
EQUITY-TIA webpage
EQUITY-TIA funding summary.

toothPASTE: Supporting families of young autistic children to care for their teeth – created with families, professionals, and researchers

toothPASTE is a free website created with autistic children, parents, and professionals to help families of autistic children with toothbrushing, eating and drinking, and going to the dentist. Children used Talking Mats™ to share what they liked and didn’t like about looking after their teeth, and a parent panel of six parents with lived experience of autism helped guide the project. The team also worked with professionals and held co-design workshops to make sure the resources are practical, respectful, and helpful in everyday life.

More information:
toothPASTE website
toothPASTE project webpage
Oral experiences of autistic children publication.