Inclusive Research

Developing Methods We Trust: A workshop and videos project between Leeds Institute for Clinical Trial Research (LICTR) and the Community 

Community outreach has been identified as a way of building trust with communities. These relationships can take a long time to build, but it's important that we do so. We worked with the Culturally Diverse Hub to develop video communications with the community about trust and perceptions of clinical trials. We then took the videos we developed back to clinical trial staff to provoke discussions about clinical trials and improve practice. This is an output of the Diversity and Inclusion in Trials Working Group at LICTR, and one of several strategy outputs in relation to Equality, Diversity,and Inclusion (EDI) in research.

More information:
Developing Methods We Trust videos and report

Global call to action for disability inclusion in health research

This global call to action sets out key challenges to disability inclusion in health research and proposes multi-level actions for addressing them. The challenges and actions span three main areas: monitoring disability inclusion, the research cycle, and the research and advisory workforce. More details about the Disability Inclusion inResearch Collaboration (DIRECT) that developed the call to action are provided in the ‘Research groups’ box below.

More information:
Global call to action publication
DIRECT webpage

No Research About Us Without Us: Removing research barriers for people withlearning disabilities

This NIHR funded research project explored how people with learning disabilities could lead a research project. Its aim was to create practical guidance on how inclusion could be implemented in the management and processes of running research with community partners and self-advocates with a learning disability.

More information:
No Research About Us Without Us
No Research About Us Without webinar
inclusive research tools and resources and templates

Partnerships for Equity and Inclusion

This network of research networks produced multidisciplinary perspectives and new knowledge on how public services can act as a mechanism to increase the social inclusion of disadvantaged groups in Official Development Assistance (ODA)-eligible contexts. Members developed a summary of evidence-based inclusion strategies and identified best practice methods for equity-focused research. Seven pilot projects in African and Asian contexts engaged practitioners/ policymakers and Non-Governmental Organisations (NGOs) in collaborative work to implement and explore the feasibility of evidence-based interventions. We developed recommendations for inclusive public services and inclusive research from a synthesis of the findings across these projects.

More information:
Partnerships for Equity and Inclusion webpage
Social Inclusion and Sustainable Development publication
Global Future Research Agenda

Removing barriers to inclusion and building strong foundations of partnership and trust with under-served groups (Community Conversations project)

This NIHR-funded project used an approach called ‘knowledge mobilisation’ to start building partnerships with under-served groups based on trust and mutual understanding. Our team included public contributors from four community organisations (Expert Citizens, Voluntary Action Stoke on Trent (VAST), Leeds Involving People, and Healthwatch Leeds) and staff from two universities (University of Leeds and Keele University). We worked together to hold ‘community conversations’ (open community-based discussions) and co-produced lessons learned for future engagement with community organisations and under-served groups.

More information:
Community Conversations publication
Article of the month recognition
Community Conversations case study

The Leeds Approach to engaging with communities for research

The Patient and Public Involvement (PPI) team at the NIHR Leeds Biomedical Research Centre have developed a set of principles to support more inclusive working with communities for research. These have been developed in collaboration with the People’s Voices Partnership (PVP). The principles have been produced following feedback from people involved in the Community Conversations project and an ever- increasing demand on community organisations and groups to support inclusive research and PPI.

More information:
Leeds Approach to engaging communities
People's Voices Partnership (PVP)