Publications
Maternal, child and family health
2023
2023. Systematic review of shared decision-making interventions for people living with chronic respiratory diseases. BMJ Open. 13.5 
2023. Decision coaching for people with kidney failure: a case study. Journal of Renal Care.
2023. Response to Moldenhauer, Johnson & Van Mieghem ISPD 2022 DEBATE: There should be formal accreditation and ongoing quality assurance/review for units offering fetal therapy that includes public reporting of outcomes. MFAET, an international standardised medical terminology to support quality assurance/review for units offering fetal therapy. Prenatal Diagnosis. 563-564 43.4
2023. Extracellular vesicles as markers and mediators of pregnancy complications: gestational diabetes, pre-eclampsia, preterm birth and fetal growth restriction. The Journal of Physiology.
2023. Associations Between Primary Residence and Mental Health in Global Marginalized Populations. Community Mental Health Journal.
2023. Influences on indoor environmental trigger remediation uptake for children and young people with asthma: A scoping review. Health Expectations. 87-97 26.1
2023. Neonatal outcomes following early fetal growth restriction: a subgroup analysis of the EVERREST study. Archives of Disease in Childhood - Fetal and Neonatal Edition.
2023. ‘It is easier to not allow them to see your disability straight away, to see you as a person’: An Interpretative Phenomenological Analysis of video gaming from the perspectives of men with Duchenne Muscular Dystrophy. Palliative Medicine. 026921632311722-026921632311722
2023. Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action. Trials. 24.1
2023. Decision Making About Disease-Modifying Treatments for Relapsing-Remitting Multiple Sclerosis: Stated Preferences and Real-World Choices. The Patient: Patient Centered Outcomes Research.
2022
2022. Difficult conversations: Talking with people about kidney
failure, end of life and advance care planning: A guide for health professionals.
2022. Adolescent and Parent Preferences for Hypodontia: Discrete Choice Experiment. Journal of Dental Research. 1590-1596 101.13
2022. A pulmonary rehabilitation shared decision-making intervention for patients living with COPD: PReSent: protocol for a feasibility study. ERJ Open Research. 8.2
2022. A pulmonary rehabilitation shared decision-making intervention for patients living with COPD: PReSent: protocol for a feasibility study. ERJ Open Research. 8.2
2022. Quality and Efficacy of Multidisciplinary Team (MDT) Quality Assessment Tools and Discussion Checklists: A Systematic Review.. BMC Cancer. 22
2022. Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions: a scoping review protocol. JBI Evidence Synthesis. 1537-1544 20.6
2022. Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention. Pilot and Feasibility Studies. 8
2022. Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review. Journal of Child Health Care. 668-682 26.4
2022. EULAR points to consider when analysing and reporting comparative effectiveness research using observational data in rheumatology. Annals of the Rheumatic Diseases. 780-785 81.6
2022. Shared decision-making in early stage non-small cell lung cancer: A systematic review. The Annals of Thoracic Surgery. 581-590 114.2
2022. Improving Development of Drug Treatments for Pregnant Women and the Fetus. Therapeutic Innovation & Regulatory Science. 976-990 56
2022. Clinical Assessment of Fetal Well-Being and Fetal Safety Indicators. Journal of Clinical Pharmacology. S67-S78 62.1
2022. Trial Forge Guidance 3: randomised trials and how to recruit and retain individuals from ethnic minority groups—practical guidance to support better practice. Trials. 23
2022. Correction: Trial Forge Guidance 3: randomised trials and how to recruit and retain individuals from ethnic minority groups—practical guidance to support better practice. Trials. 760-760 23.1
2022. Mealtime difficulties in adults with mental health conditions: an integrative review. Journal of Mental Health.
2022. Using personalised avatars as an adjunct to a weight loss management programme: a randomised controlled feasibility study. JMIR Formative Research.
2022. Using Personalized Avatars as an Adjunct to an Adult Weight Loss Management Program: Randomized Controlled Feasibility Study. JMIR Formative Research. 6.10
2022. Feasibility and acceptability of an education and training e-resource to support the sexuality, intimacy and relationship needs of older care home residents: a mixed methods study. Age and Ageing. 51.10
2022. Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: a multi-professional scoping review. Age and Ageing. 51.12
2022. Cancer, Fertility and Me: developing and testing a novel fertility preservation patient decision aid to support women at risk of losing their fertility because of cancer treatment.. Frontiers in Oncology.
2022. Mainstreaming global mental health: Is there potential to embed psychosocial well-being impact in all global challenges research?. Applied Psychology: Health and Well-Being. 1291-1313 14.4
2022. Predictive genetic testing for Motor neuron disease: time for a guideline?. European Journal of Human Genetics. 635-636 30.6
2022. How the COVID-19 pandemic has affected rheumatology research. Nature Reviews Rheumatology. 128-132 18.3
2022. Foetal loss after chorionic villus sampling and amniocentesis in twin pregnancies: A multicentre retrospective cohort study. Prenatal Diagnosis. 1554-1561 42.12
2022. A structured intervention to support early palliative care conversations for oncology patients – A qualitative feasibility study. Clinical Oncology. e515-e522 34.12
2022. Researching sensitive topics in healthcare. Evidence Based Nursing. 41-43 25.2
2022. Factors influencing patient satisfaction after treatments for early-stage non-small cell lung cancer. Journal of Cancer Research and Clinical Oncology. 2447-2454 148.9
2022. Breaking the cycle of inequalities for people with a learning disability. British Journal of General Practice. 510-511 72.724
2022. Healthcare Professional experiences of making surgical oncology decisions and delivering COVID-19 safe care: a qualitative study. Acta Chirurgica Belgica.
2022. Development of standard definitions and grading for Maternal and Fetal Adverse Event Terminology.. Prenatal Diagnosis. 15-26 42.1
2022. Measures used to assess interventions for increasing patient involvement in Danish healthcare setting: a rapid review. BMJ Open. 12.12
2022. Using personalised avatars as an adjunct to a weight loss management programme: a randomised controlled feasibility study (Preprint).
2022. Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action.
Maksym K; Yong H; Petres ES; Spencer R; David A; Hillman S; Sferruzzi-Perri A (2022) Human Placental Glucose Transporters Expression in Early- and Late-Onset Fetal Growth Restriction (FGR). Does Timing of Diagnosis Matter? SRI 2022: 69th Annual Meeting of the Society for Reproductive Investigation (SRI)
Rabbee J; Russell AM; Bryant LD; House AO (2022) Enabling Diabetes Informed ConsenT (EDICT): Creating an evidence-based, accessible, high quality, user co-developed diabetes information resource with and for people with an intellectual disability Diabetes UK Professional Conference 2022
2021
2021. Maternal serum concentrations of proteins linked to angiogenesis and cardiovascular disease are associated with placental histomorphometry in severe early-onset fetal growth restriction with effect modification by fetal sex and aspirin use.. International Federation of Placental Associations
2021. POS1473-HPR SELF- AND SHARED-MANAGEMENT INTERVENTIONS FOR CHILDREN, YOUNG PEOPLE, AND FAMILIES LIVING WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES: AN INTEGRATIVE REVIEW. Annals of the Rheumatic Diseases
2021. FACTORS FACILITATING THE SELF- AND SHARED-MANAGEMENT OF JUVENILE IDIOPATHIC ARTHRITIS. RHEUMATOLOGY
2021. POS0154-HPR FACTORS FACILITATING THE SELF- AND SHARED-MANAGEMENT OF JIA BY CHILDREN, YOUNG PEOPLE, THEIR FAMILIES, AND PROFESSIONALS INVOLVED IN THEIR CARE: A REALIST EVALUATION. Annals of the Rheumatic Diseases
2021. POS0057-PARE SUMMARY OF PATIENT/PARENT ORGANISATION SERVICES PROMOTING SELF- AND SHARED-MANAGEMENT OF JIA IN THE UK AND IRELAND. Annals of the Rheumatic Diseases
2021. Does lung cancer screening information support informed decision-making? A systematic environmental scan review. LUNG CANCER
2021. Adolescent fathers’ experiences in Indonesia: a qualitative study. International Journal of Adolescence and Youth. 201-210 26.1
2021. MRI Measurement of Placental Perfusion and Oxygen Saturation in Early Onset Fetal Growth Restriction. BJOG: An International Journal of Obstetrics & Gynaecology. 337-345 128.2
2021. Producing a successful PhD thesis. Evidence Based Nursing. 1-2 24.1
2021. The Use of Non-directive Therapy for Adolescents with Autism Spectrum Disorder: A Systematic Review. Counselling and Psychotherapy Research.
2021. Therapists' experiences of working with the intergenerational impact of troubles‐related trauma. Psychotherapy and Politics International. 19.2
2021. Multidisciplinary Team Decisions in the Management of Abdominal Aortic Aneurysm: A Service and Quality Evaluation. EJVES Vascular Forum.
2021. Integrating behaviour change interventions and patient decision aids: How to accomplish synergistic effects?. Patient Education and Counseling. 3104-3108 104.12
2021. A scoping review of education and training resources supporting care home staff in facilitating residents’ sexuality, intimacy and relational needs. Age and ageing.
2021. Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: a multiprofessional scoping review protocol. BMJ Open. 11.3
2021. Analysing and reporting of observational data: a systematic review informing the EULAR points to consider when analysing and reporting comparative effectiveness research with observational data in rheumatology. RMD Open. e001818-e001818 7.3
2021. Investigating the causes of patient anxiety at induction of anaesthesia: A mixed methods study. Journal of Perioperative Practice. 246-254 31.7-8
2021. Young people’s perspectives on patient-reported outcome measures in inflammatory arthritis: results of a multicentre European qualitative study from a EULAR task force. RMD Open. e001517-e001517 7.1
2021. A review of common evidence review designs published inJAN; a 10‐year review. Journal of Advanced Nursing. 77.9
2021. “Over-preoccupation with healthy food is perceived as worship of the body”: Food, culture and beliefs in Ultra-Orthodox Jewish families. Appetite. 105621-105621 167
2021. Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study. European Journal of Cancer Care. 30.1
2021. A not-knowing, values-based and relational approach to counselling education. British Journal of Guidance & Counselling.
2021. Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards. Medical Decision Making.
2021. 2019 EULAR points to consider for the assessment of competences in rheumatology specialty training. Annals of the Rheumatic Diseases. 65-70 80.1
2021. The International Patient Decision Aid Standards (IPDAS) Collaboration: Evidence Update 2.0.. Medical Decision Making. 729-733 41.7
2021. COVID-19 restrictions on multidisciplinary team meeting decision-making: service evaluation in a major UK cancer centre. British Journal of Surgery. e162-e163 108.4
2021. Endorsement of the OMERACT core domain set for shared decision making interventions in rheumatology trials: Results from a multi-stepped consensus-building approach. Seminars in Arthritis and Rheumatism. 593-600 51.3
2021. How to engage patient partners in health service research: a scoping review protocol. Research Involvement and Engagement. 7
2021. Placenta-specific Slc38a2/SNAT2 knockdown causes fetal growth restriction in mice. Clinical Science. 2049-2066 135.17
2021. Erratum to: Kidney Disease Pathways, Options and Decisions (KD-POD): An Environmental Scan of International Patient Decision Aids (PtDA). Nephrology Dialysis Transplantation. 1140-1143 36.6
2021. Standards framework for shared-decision-making support tools, including patient decision aids.
2020
2020. The Dialysis Decision Aid Booklet: Making The Right Choices for You (2020 update).
2020. Cancer, Fertility and Me - Patient Decision Aid.
2020. A Dialysis and Conservative Care Decision Aid: Living with Kidney Disease.
2020. Investigating the causes of patient anxiety at induction of anaesthesia: a mixed methods study. Winter Sicentific Meeting - Association of Anaesthetists
2020. A realist approach to eliciting the initial programme theories for the self- and shared-management of juvenile idiopathic arthritis by children, young people, families and professionals involved in their care.. Pediatric Rheumatology
2020. MotiVar: Motivating Weight Loss Through A Personalised Avatar. 2019 13th International Conference on Software, Knowledge, Information Management and Applications (SKIMA)
2020. USING PATIENT EXPERIENCES OF WORSENING KIDNEY DISEASE TO INFORM A DIALYSIS AND CONSERVATIVE CARE PATIENT DECISION AID BOOKLET. MEDICAL DECISION MAKING
2020. Indonesian adolescents’ experiences during pregnancy and early parenthood: a qualitative study. Journal of Psychosomatic Obstetrics & Gynecology. 317-326 41.4
2020. Fear of losing it: an auto-ethnographic case study exploring re-triggered loss experiences during psychotherapy training. British Journal of Guidance & Counselling.
2020. Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review. Archives of Disease in Childhood. 1093-1104 105.11
2020. Involving Older Adults in Developing Physical Activity Interventions to Promote Engagement: a Literature Review. Journal of Population Ageing. 325-345 13.3
2020. Patient-reported experience and outcomes from orthodontic treatment. Journal of Orthodontics.
2020. Comparative quantitative survey of patient experience in Barrett's oesophagus and other gastrointestinal disorders. BMJ Open Gastroenterology. 7.1
2020. The lived experience of adults with cystic fibrosis: what they would tell their younger selves about the gut. Journal of Human Nutrition and Dietetics. 151-158 33.2
2020. Behaviour and emotions of children and young people with congenital heart disease: A literature review. Journal of Child Health Care. 317-332 24.2
2020. Improving musculoskeletal health for children and young people – A ‘call to action’. Best Practice & Research Clinical Rheumatology. 101566-101566 34.5
2020. EULAR points to consider for the use of big data in rheumatic and musculoskeletal diseases. Annals of the Rheumatic Diseases. 69-76 79.1
2020. Circulating mRNAs are differentially expressed in pregnancies with severe placental insufficiency and at high risk of stillbirth. BMC Medicine. 18
2020. How ‘The Daily Mile™’ works in practice: A process evaluation in a UK primary school.. Journal of Child Health Care. 544-559 24.4
2020. Using avatars in weight management settings: A systematic review. Internet Interventions. 19
2020. Different corticosteroid induction regimens in children and young people with juvenile idiopathic arthritis: the SIRJIA mixed-methods feasibility study. Health Technology Assessment. 1-152 24.36
2020. Help-Seeking for Mental Health Issues in Professional Rugby League Players. Frontiers in Psychology. 11
2020. Impact of communication on first treatment decisions in people with relapsing-remitting multiple sclerosis. Patient Education and Counseling.
2020. Patient perspective on decisions to switch disease-modifying treatments in relapsing-remitting multiple sclerosis. Multiple Sclerosis and Related Disorders. 46
2020. Patients’ confidence in treatment decisions for early stage non-small cell lung cancer (NSCLC). Health and Quality of Life Outcomes. 18.1
2020. Parent and adolescent communication with healthcare professionals about Type 1 diabetes management at adolescents’ outpatient clinic appointments. Diabetic Medicine. 785-796 37.5
2020. Research made simple: developing complex interventions. Evidence Based Nursing. 35-37 23.2
2020. What are the foundations of a good PhD?. Evidence Based Nursing. 94-96 23.4
2020. Comparison of efficiency and function of VEGF adenovirus vectors in endothelial cells for gene therapy of placental insufficiency. Human Gene Therapy.
2020. Comparison of Efficiency and Function of Vascular Endothelial Growth Factor Adenovirus Vectors in Endothelial Cells for Gene Therapy of Placental Insufficiency. Human Gene Therapy. 1190-1202 31.21-22
2020. Ensuring young voices are heard in core outcome set development: international workshops with 70 children and young people. Research Involvement and Engagement. 6.1
2020. “Motherhood is like a roller coaster… Lots of ups, then downs, something
chaotic… “; UK & Israeli women’s experiences of motherhood 6-12 months
postpartum. Journal of Reproductive and Infant Psychology. 523-545 38.5
2020. Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019. Pediatric Rheumatology. 18.1
2020. Umbrella review of family-focused care interventions supporting families where a family member has a long-term condition. Journal of Advanced Nursing. 1911-1923 76.8
2020. Non-invasive prenatal testing for aneuploidy screening. BMJ. 371
2020. From ‘neurotic’ to ‘managing’ mother: The ‘medical career’ experienced by mothers of a child diagnosed with Juvenile Idiopathic Arthritis. British Journal of Health Psychology. 324-338 25.2
2020. The impact of reproductive issues on preferences of women with relapsing multiple sclerosis for disease modifying treatments. The Patient: Patient Centered Outcomes Research. 583-597 13.5
2020. Critical review of leaflets about conservative management used in UK renal services. Journal of Renal Care. 250-257 46.4
2020. Kidney disease pathways, options and decisions: an environmental scan of international patient decision aids. Nephrology Dialysis Transplantation.
Horne M; Hill A; Ugail H; Murrells T; Hardy M (2020) Using personalised avatars as an adjunct to a weight loss management programme: participant’s perspectives 16th World Congress on Public Health 2020
Jones G; Darby F; Moss R; Vogt K; Skull J; Velikova G; Greenfield D; Bekker H; Mahmoodi N; Snowden J (2020) Cancer, fertility and me: a NEW fertility preservation patient decision aid to support YOUNG women with breast cancer UK Interdisciplinary Breast Cancer Symposium 2020, pp. 578-578
2020. The State of Girls’ Rights in the UK 2019 - 2020. In: Lincoln J (eds.) The State of Girls’ Rights in the UK 2019 - 2020.
2019
2019. Treatment Decision Making and Relapsing Remitting Multiple Sclerosis: The CRIMSON Project Decision Aid Booklet.
2019. AB0936 A NATIONAL SURVEY OF CLINICAL PRACTICE OF CORTICOSTEROID USE IN NEWLY DIAGNOSED OR FLARING CASES OF JUVENILE IDIOPATHIC ARTHRITIS ACROSS THE UK. Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. Trends in European Academy of Nursing Science (EANS) doctoral research projects 2018: taking up the challenge of intervention research?. EANS Winter Summit Conference
2019. Supporting care home residents sexuality, intimacy and relationship needs: findings from a scoping review. 8th Annual Conference of the British Society of Gerontology
2019. Let's Talk about the 'S' Word: what do care home staff want from training resources to support care home residents sexuality, intimacy and relationship needs. British Society of Gerontology 48th Annual Conference
2019. A national survey of clinical practice of corticosteroid use in newly diagnosed or flaring cases of juvenile idiopathic arthritis across the UK. RHEUMATOLOGY
2019. SAT0668 “WHEN YOU READ THIS, YOU REALLY FEEL OLD!” PERSPECTIVES OF YOUNG PEOPLE WITH INFLAMMATORY ARTHRITIS ON PATIENT REPORTED OUTCOME MEASURES FROM A EUROPEAN QUALITATIVE STUDY. Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. "When You Read This, You Really Feel Old!" Perspectives of Young People with Inflammatory Arthritis on Patient Reported Outcome Measures from a European Qualitative Study. ARTHRITIS & RHEUMATOLOGY
2019. THU0642 EULAR POINTS TO CONSIDER FOR THE DEVELOPMENT, EVALUATION AND IMPLEMENTATION OF MOBILE HEALTH APPLICATIONS FOR SELF-MANAGEMENT IN PATIENTS WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES. Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. Supported self-management for adults with a mild or moderate learning disability and Type 2 diabetes: Is a consented, individually randomised controlled trial (RCT) possible? The OK Diabetes feasibility RCT. DIABETIC MEDICINE
2019. Development of REsources based on reasonable adjustments to MAINstream diabetes and obesity care for adults with a learning disability: The REMAIN project. DIABETIC MEDICINE
2019. AB0937 IDENTIFYING THE PRIMARY OUTCOME MEASURE AND PROTOCOL COMPONENTS FOR A PROSPECTIVE FEASIBILITY STUDY OF CORTICOSTEROID REGIMENS FOR CHILDREN AND YOUNG PEOPLE WITH JUVENILE IDIOPATHIC ARTHRITIS USING CONSENSUS METHODS WITH YOUNG PEOPLE, FAMILIES AND PROFESSIONALS. Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. AB1058 CO-DESIGNING A COMPARATIVE RANDOMISED CONTROLLED CLINICAL TRIAL OF CORTICOSTEROID REGIMENS WITH CHILDREN, YOUNG PEOPLE AND PARENTS LIVING WITH JUVENILE IDIOPATHIC ARTHRITIS. Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. AB1411-HPR THE SELF- AND SHARED-MANAGEMENT OF PAEDIATRIC-ONSET RHEUMATIC AND MUSCULOSKELETAL DISEASES BY CHILDREN, YOUNG PEOPLE AND THEIR FAMILIES: INITIAL FINDINGS FROM A THEORY-GLEANING PROCESS WITH PATIENT ORGANISATION REPRESENTATIVES. Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. OP0172 PARE WORKING TOGETHER FOR CHILDREN AND FAMILIES LIVING WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES: THE EUROPEAN NETWORK FOR CHILDREN WITH ARTHRITIS (ENCA). Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. THE SELF- AND SHARED-MANAGEMENT OF JUVENILE IDIOPATHIC ARTHRITIS BY CHILDREN, YOUNG PEOPLE, FAMILIES AND PROFESSIONALS INVOLVED IN THEIR HEALTHCARE AND EDUCATION: REFLECTIONS FROM A PATIENT-LED, REALIST EVALUATION. RHEUMATOLOGY
2019. Co-designing a comparative randomised controlled clinical trial of corticosteroid regimens with children, young people and parents living with juvenile idiopathic arthritis. RHEUMATOLOGY
2019. AB1233 PEOPLE WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES CONNECT AND LEARN ABOUT HEALTH-RELATED ISSUES USING SOCIAL MEDIA. Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12–15 June 2019
2019. Dataset to support findings of a study exploring the lived experience of adults with cystic fibrosis (what they would tell their younger selves about the gut).
2019. Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment. The Patient. 137-148 12.1
2019. Can the current hypodontia care pathway promote shared decision-making?. Journal of Orthodontics. 126-136 46.2
2019. Barrett’s oesophagus: a qualitative study of patient burden, care delivery experience and follow up needs. Health Expectations. 21-33 22.1
2019. Making research central to good paediatric practice. Archives of Disease in Childhood. 385-388 104.4
2019. How to navigate the ethical review of research. Archives of Disease in Childhood. 697-700 104.7
2019. Understanding treatment decisions from the perspective of people with relapsing remitting multiple Sclerosis: A critical interpretive synthesis. Multiple Sclerosis and Related Disorders. 370-377 27
2019. Decisional Conflict Scale Findings among Patients and Surrogates Making Health Decisions: Part II of an Anniversary Review. Medical Decision Making. 315-326 39.4
2019. Decisional Conflict Scale Use over 20 Years: The Anniversary Review. Medical Decision Making. 301-314 39.4
2019. Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study. BMC Pregnancy and Childbirth. 19.1
2019. A feasibility study of administering the electronic Research & Development Culture Index to the multidisciplinary workforce in a UK Teaching Hospital. Journal of Multidisciplinary Healthcare. 935-945 12
2019. Current status of use of big data and artificial intelligence in RMDs: a systematic literature review informing EULAR recommendations. RMD Open. e001004-e001004 5.2
2019. “Someone to Talk to”: Influence of Player Welfare Provision on Mental Health in Professional Rugby League Players. Journal of Clinical Sport Psychology. 486-503 13.3
2019. Estimating risk of encapsulating peritoneal sclerosis accounting for the competing risk of death. Nephrology Dialysis Transplantation. 1585-1591 34.9
2019. Evaluation of an educational board game to improve use of the partograph in sub-Saharan Africa: A quasi-experimental study. Sexual and Reproductive Healthcare. 54-59 20
2019. A qualitative study of partner engagement in HIV testing in Malawi and Kenya. Culture, Health and Sexuality.
2019. Involving fathers in maternal and child health: are we there yet?. Journal of Psychosomatic Obstetrics and Gynecology. 1+ 40.1
2019. Social consequences for women undergoing fertility treatment. Journal of Psychosomatic Obstetrics and Gynecology. 89+ 40.2
2019. Factors associated with accelerometer measured movement behaviours among White British and South Asian children aged 6-8 years during school terms and school holidays. BMJ Open. 9.8
2019. Ethnic differences in sedentary behaviour in 6–8-year-old children during school terms and school holidays: a mixed methods study. BMC Public Health. 19
2019. EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases. RMD Open. e001014-e001014 5.2
2019. What enables or prevents women with depressive symptoms seeking help in the postnatal period?. British Journal of Midwifery. 219-227 27.4
2019. Supporting children and young people to assume responsibility from their parents for the self-management of their long-term condition: an integrative review. Child: Care, Health and Development. 175-188 45.2
2019. Social media use in adolescents and young adults with serious illnesses: An integrative review. BMJ Supportive and Palliative Care. 235-244 9
2019. Framework to help design and review research involving children. Archives of Disease in Childhood. 601-604 104.6
2019. How to involve children and young people in what is, after all, their research. Archives of Disease in Childhood. 494-500 104.5
2019. How do we help women become less fearful of birth?. Journal of Psychosomatic Obstetrics and Gynecology.
2019. Are we doing it right? Self-care support for patients with type 2 diabetes in urban areas in Malaysia. Enfermería Clínica. 691-697 29.Supplement 2
2019. User testing digital, multimedia information to inform children, adolescents and their parents about healthcare trials. Journal of Child Health Care. 468-482 23.3
2019. Israeli and British women well-being and eating behaviours in pregnancy and the postpartum. Journal of Reproductive and Infant Psychology. 123-138 37.2
2019. Patient and carer involvement in healthcare education, service delivery and research: avoiding tokenism.. Evidence-Based Nursing. 65-66 22.3
2019. Achieving orphan designation for placental insufficiency: annual incidence estimations in Europe. BJOG: An International Journal of Obstetrics & Gynaecology. 1157-1167 126.9
2019. Children and young people’s experiences and perceptions of self-management of type 1 diabetes: A qualitative meta-synthesis. Health Psychology Open. 6.2
2019. Tokenism or true partnership: Parental involvement in a child's acute pain care.. Journal of Clinical Nursing. 1491-1505 28.9-10
2019. Meaning making and Generativity in Children and Young people with Life limiting conditions (MAGICYL). Evidence-Based Nursing. 33-35 22.2
Bekker H; Stiggelbout A; Kunneman M; Enge E; Pieterse A (2019) Psychometric Testing of SHARED - a patient reported outcome measure of shared decision making. 10th International Shared Decision Making Conference, pp. 24-24
Brown LJE; Horne M; Brown Wilson C; Dickinson T; Simpson P (2019) Let's Talk about the 'S' Word! Developing a Staff Training Resource to Support the Sexuality, Intimacy and Relationship Needs of Care Home Residents. International Association of Gerontology and Geriatrics European Region Congress (IAGG-ER)
2018
2018. Foreword: Parent and young person involvement in research—a consumer perspective. In: Paediatric Rheumatology.
2018. Indices of Change: Analysing the Indexical Properties of Data from Psychotherapy Case Work to Discern Patterns of Therapeutic Change Over Time. In: Costa AP; Reis LP; Souza FND; Moreira A (eds.) Computer Supported Qualitative Research: Second International Symposium on Qualitative Research (ISQR 2017). Advances in Intelligent Systems and Computing.
2018. Gene Therapy in Fetal Growth Restriction. In: Placental-Fetal Growth Restriction.
2018. New approaches in measuring what matters to patients – decision aid tools. EULAR 2018: Annual European Congress of Rheumatology
2018. Improving core outcome set development for children and young people: Learning from a case study in acute appendicitis and consultation with an international group of children and young people. 7th COMET Initiative Meeting
2018. Nothing about us without us: The importance of involving young people in healthcare research, from the bench to the bedside. INTERNATIONAL JOURNAL OF PHARMACEUTICS
2018. OP0011-PARE A week to tweet: findings from young pare’s online course for twitter novices. EULAR 2018: 19th Annual European Congress of Rheumatology
2018. THU0743-HPR Supported self-management interventions for families and children aged 4 to 11 years old living with arthritis, asthma and type one diabetes: an integrative review. EULAR 2018: 19th Annual European Congress of Rheumatology
2018. The essential role of consumers in clinical and health services research: best practice examples from the paediatric rheumatology clinical studies group consumer representatives. BSPAR Annual Conference 2016
2018. The development and evaluation of an interactive health communication application to promote self-management in young people diagnosed with juvenile idiopathic arthritis: a pilot study. BSPAR Annual Conference 2016
2018. Social Media Use for Health-Related Purposes By People with Rheumatic and Musculoskeletal Diseases - Results of a Global Survey. 2018 ACR/ARHP Annual Meeting
2018. Describing psychological and behavioural problems in Omani young people: reliability of the Self-reported Strength and Difficulties Questionnaire (SDQ) in Oman. Journal of Child and Adolescent Health. 2.2
2018. The Impact of Fibromyalgia in Spondyloarthritis: From Classification Criteria to Outcome Measures. Frontiers in Medicine. 5
2018. Activity pacing: moving beyond taking breaks and slowing down. Quality of Life Research. 1933-1935 27.7
2018. Identification and appraisal of outcome measures used to evaluate hypodontia care: A systematic review. American Journal of Orthodontics and Dentofacial Orthopedics. 184-194.e18 153.2
2018. Eliciting preferences in dentistry with multiattribute stated preference methods: A systematic review. JDR Clinical and Translational Research. 326-335 3.4
2018. Assessment of information resources for people with hypodontia. BDJ Open. 4
2018. Multiple influences on participating in physical activity in older age: Developing a social ecological approach. Health Expectations. 239-248 21.1
2018. Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations. Health Expectations. 441-447 21.2
2018. Characterizing adults with Type 2 diabetes mellitus and intellectual disability: outcomes of a case‐finding study. Diabetic Medicine. 352-359 35.3
2018. Empirical Evidence Illuminating Gendered Regimes in UK Higher Education: Developing a New Conceptual Framework. Education Sciences. 8.2
2018. Consult, Negotiate, and Involve: Evaluation of an Advanced Communication Skills Program for Health Care Professionals. Journal of Pediatric Oncology Nursing. 296-307 35.4
2018. Skin care for healthy babies at term: a systematic review of the evidence. Midwifery. 29-43 56
2018. Letter to Editor. Journal of Pediatric Nursing. 43
2018. Exploring the Feasibility of Use of An Online Dietary Assessment Tool (myfood24) in Women with Gestational Diabetes. Nutrients. 10.9
2018. Developing a complex intervention to support timely engagement with palliative care for patients with advanced cancer in primary and secondary care in the UK: a study protocol. BMJ Open. 8.5
2018. Exercise and physical activity in asylum seekers in Northern England; using the theoretical domains framework to identify barriers and facilitators. BMC Public Health. 18.1
2018. The Barriers and Facilitators to Implementing 'The Daily Mile' in a UK Based Primary School: a Process Evaluation Protocol.. Association of Paediatric Chartered Physiotherapists Barry J (eds.). 37-45 9.1
2018. Cultural competence in healthcare in the community: A concept analysis. Health and Social Care in the Community. 590-603 26.4
2018. Psychosoma in crisis: an autoethnographic study of medically unexplained symptoms and their diverse contexts. British Journal of Guidance and Counselling. 135-147 46.2
2018. Explanation and elaboration of the Standards for UNiversal reporting of patient Decision Aid Evaluations (SUNDAE) guidelines: examples of reporting SUNDAE items from patient decision aid evaluation literature. BMJ Quality and Safety. 389-412 27.5
2018. Associations of intention to undertake physical activity among community dwelling British South Asian adults aged 60 and over: a cross sectional study.. Public Health. 1-8 162
2018. A systematic review of interventions to increase physical activity among South Asian adults. Public Health. 71-81 162
2018. Randomized controlled feasibility trial of supported self-management in adults with Type 2 diabetes mellitus and an intellectual disability: OK Diabetes. Diabetic Medicine. 776-788 35.6
2018. Development of a supported self-management intervention for adults with type 2 diabetes and a learning disability. Pilot and Feasibility Studies. 4
2018. ‘It’s not mind blowing really….it’s about keeping people happy’: the perceptions of player welfare managers in Rugby Super League. Qualitative Research in Sport, Exercise and Health. 1-20
2018. Are publicly available internet resources enabling women to make informed fertility preservation decisions before starting cancer treatment: an environmental scan?. BMC Medical Informatics and Decision Making. 18.1
2018. Working towards developing evidence based psychosocial interventions to promote health and wellbeing in pregnancy. Journal of Psychosomatic Obstetrics & Gynecology. 167-167 39.3
2018. Reviewing the literature: choosing a review design. Evidence-based nursing. 39-41 21.2
2018. Developing and feasibility testing of data collection methods for an economic evaluation of a supported selfmanagement programme for adults with a learning disability and type 2 diabetes. Pilot and Feasibility Studies. 4
2018. Interpretive phenomenological analysis applied to healthcare research. Evidence-Based Nursing. 7-9 22.1
2018. Mobilising identity through social media: psychosocial support for young people with life-limiting conditions. Evidence-based nursing. 60-62 21.3
2018. Why nutrition should be the first prescription. Journal of Psychosomatic Obstetrics and Gynecology. 247+ 39.4
2018. Professionals need to discuss more effectively the holistic needs of their patients regarding palliative care. Evidence Based Nursing. 114-114 21.4
2018. Phenomenology as a healthcare research method. Evidence-Based Nursing. 96-98 21.4
2018. Dignity therapy interventions for young people in palliative care: a rapid structured evidence review. International Journal of Palliative Nursing. 339-349 24.7
2018. The feasibility of using the EQ-5D-3L with adults with mild to moderate learning disabilities within a randomized control trial: a qualitative evaluation.. Pilot and feasibility studies. 4.1
2018. Fatalism, faith and fear: A case study of self‐care practice among adults with Type 2 diabetes in urban Malaysia. Journal of Clinical Nursing. 3758-3767 27.19-20
2018. Standards for UNiversal reporting of patient Decision Aid Evaluation studies: the development of SUNDAE Checklist. BMJ Quality and Safety. 380-388 27.5
2018. Maternal sildenafil for severe fetal growth restriction (STRIDER): a multicentre, randomised, placebo-controlled, double-blind trial. The Lancet Child & Adolescent Health. 93-102 2.2
2018. Protective parents and permissive children: what qualitative interviews with parents and children can tell us about the feasibility of juvenile idiopathic arthritis trials. Pediatric Rheumatology. 16
2018. Infant hunger and satiety cues during the first two years of life: Developmental changes of within meal signalling. Appetite. 303-310 128
2018. ‘We’ve Had Our Sex Life Way Back’: Older Care Home Residents, Sexuality and Intimacy. Ageing & Society. 1478-1501 38.7
2018. Parents' and Health professionals' Views of Collaboration in the Management of Childhood Long-term Conditions. Journal of Pediatric Nursing. 36-44 43
2018. Nothing about us without us: The importance of involving young people in healthcare research, from the bench to the bedside. International Journal of Pharmaceutics. 524-525 536.2
2018. Social media supremacy: a force of change paving the way for the next generation of healthcare and research.. Evidence-Based Nursing. 2-3 21.1
2018. Health Promotion and Wellness Initiatives Targeting Chronic Disease Prevention and Management for Adults with Intellectual and Developmental Disabilities: Recent Advancements in Type 2 Diabetes. Current Developmental Disorders Reports. 132-142 5.3
2018. The school as a therapeutic community. THERAPEUTIC COMMUNITIES. 109-117 39.3
2018. Young People’s, Parents’, and Professionals’ Views on Required Components of Mobile Apps to Support Self-Management of Juvenile Arthritis: Qualitative Study. JMIR mHealth and uHealth. 6.1
2018. Peer-based social support for young-people with Juvenile Arthritis: views of young people, parents/carers and healthcare professionals within the UK. Journal of Pediatric Nursing. e85-e91 43
2018. Dialysis vs conservative management decision aid: a study protocol. Journal of Kidney Care. 179-185 3.3
2018. Qualitative accounts of young people, parents and staff involved with a purpose-designed, pilot short-break service for 18-24 year olds with life-limiting conditions. Children and Youth Services Review. 142-150 86
2018. Young people get arthritis too.
2018. Things get solved when you become involved: A case study of RAiISE, a young person and family-led research initiative to improve education support for young people with chronic conditions.
2018. Self-management of chronic disease in childhood: the iSMART study.
2018. Social Media Use for Health-Related Purposes By People with Rheumatic Diseases.
Garrod D; Darwin Z; McGowan L (2018) ‘How do midwives and fathers communicate during labour and birth?’ Emerging findings from an ethnographic study Society for Reproductive and Infant Psychology Annual Conference. Lodz, Poland
Hartley H; Darwin Z; McGowan L; Smith DM (2018) Women’s understanding of managing gestational weight gain during pregnancy: A thematic synthesis Society for Reproductive and Infant Psychology Annual Conference. Lodz, Poland
Jones GL; Vogt K; Darby F; Mahmoodi N; Hughes J; Greenfield D; Skull J; Lane S; Brauten-Smith G; Yeomanson D (2018) Experience of developing and evaluating a fertility preservation patient decision aid for teenage and adult women with cancer for use in oncology settings, UK (The Cancer, Fertility and Me study) 20th World Congress of Psycho‐Oncology, pp. 45-45
Nightingale R; Stones S (2018) Getting to grips with involving and engaging children, young people and families in research Leeds Children’s Hospital Research Forum
Stones S (2018) Tell me and I forget, teach me and I remember, involve me and I learn Glasgow Caledonian University School of Health and Life Sciences Research Seminar
Stones S (2018) 8766 days to change a life The Hospital for Sick Children (SickKids) Child Health Evaluative Sciences (CHES) Research Group Seminar
Stones S (2018) In the driving seat: Health care and research led for, and by young people University of Central Lancashire (UCLAN) Centre for Children and Young People’s Participation Seminar Series
Stones S (2018) Stumbling through the fog: A lived experience of fibromyalgia ME, CFS and Fibromyalgia Alliance Malta VO/818 and European Network of Fibromyalgia Associations (ENFA) Conference
Stones S (2018) It’s more than just aches and pains NRAS Bolton Rheumatoid Arthritis Support Group (BRASG) Meeting
Stones S (2018) Why fit in when you were born to stand out! 4th iCAN Research and Advocacy Summit
Stones S (2018) JIA journeys Children’s Chronic Arthritis Association (CCAA) Family Support Weekend
Stones S (2018) Patient and public involvement in research: Two sides of the same coin University College Dublin’s Facilitating a collaborative approach to arthritis and rheumatic disease research conference
Stones S (2018) Digging for nuggets of gold: Developing a self-and shared-management framework to support children with arthritis and their families using a realist approach University of Leeds School of Healthcare Postgraduate Research Conference
Wright C; Stones S; Parker D; Vale S (2018) Making research opportunities visible to young people with JIA and their families British Society for Paediatric and Adolescent Rheumatology Conference, JIA Topic Specific Group Meeting
2018. 21st EULAR Annual European Conference of PARE report.
2018. Managing with Learning Disability and Diabetes: OK-Diabetes - a case-finding study and feasibility randomised controlled trial.
2017
2017. Spirituality in Acute Health Care Settings. In: Spiritually Competent Practice in Health Care.
2017. Spiritually Competent Practice in Health Care: What Is It and What Does It Look Like?. In: Spiritually Competent Practice in Health Care.
2017. Spirituality in Western Multicultural Societies. In: Spiritually Competent Practice in Health Care.
2017. Biopsychosocial factors in chronic pelvic pain. In: Biopsychosocial Factors in Obstetrics and Gynaecology.
2017. Clinical Decision Making. In: Stanley D (eds.) Clinical Leadership in Nursing and Healthcare: values in to action.. 2nd.
2017. Introducing RAiISE – Raising awareness of invisible illnesses in schools and education. 24th Paediatric Rheumatology European Society Congress
2017. PARE0001 Growing stronger together: implementing eular young pare's strategy. EULAR 2017: 18th EULAR Annual European Congress of Rheumatology
2017. PARE0015 The importance of face-to-face networks: findings from the 2nd eular young pare conference, “change the future”. EULAR 2017: 18th EULAR Annual European Congress of Rheumatology
2017. OP0327-PARE Your Rheum – Giving young people a voice in rheumatology research. 18th EULAR Annual European Congress of Rheumatology
2017. Use and experiences of myfood24: an online 24hour dietary recall tool to record and self monitor dietary intake in women with gestational diabetes: a feasibility and acceptability study. Diabetes UK Professional Conference 2017
2017. Access to and impact of psychological support for healthcare professionals working in palliative care settings.. RCN International Research Conference
2017. Drawing as a research tool: what does it add?. RCN International Research Conference
2017. Decision Aids’ Efficacy to Support Women’s Fertility Preservation Choices Before Cancer Treatment: An Environmental Scan. 9th International Shared Decision Making Conference
2017. Improving patient decision aid manuscripts using the new SUNDAE Checklist from IPDAS. 9th International Shared Decision Making Conference
2017. Families’ views on the feasibility of a corticosteroid trial in JIA: a qualitative study. 24th Paediatric Rheumatology European Society Congress
2017. Family perspectives on the feasibility of a corticosteroid induction regimen randomised controlled trial in juvenile idiopathic arthritis: results of a qualitative study. 4th International Clinical Trials Methodology Conference (ICTMC) and the 38th Annual Meeting of the Society for Clinical Trials
2017. Developing, evaluation and implementing smartphone applications for young people living with rheumatic and musculoskeletal diseases: a scoping review of empirical research. 24th Paediatric Rheumatology European Society Congress
2017. Identifying the self-management needs of children with rheumatic and musculoskeletal diseases and their families: an exploratory sequential mixed methods study proposal. British Society for Paediatric and Adolescent Rheumatology 2017
2017. Involving patients, parents and carers in paediatric rheumatology research: best practice examples from lay representatives of the United Kingdom’s clinical studies group. 24th Paediatric Rheumatology European Society Congress
2017. The critical role of patients, parents and carers in guiding the paediatric rheumatology research strategy for the United Kingdom through the clinical studies group. INVOLVE at 21 Conference
2017. An exploration of lived experiences amongst adults with rheumatoid arthritis using an online research community platform: A pilot study. 18th EULAR Annual European Congress of Rheumatology
2017. OP0210-PARE The development and evaluation of an interactive health communication application to educate and empower young people living with juvenile idiopathic arthritis: a pilot study. 18th EULAR Annual European Congress of Rheumatology
2017. Developing a mobile-app to aid young people’s self-management of chronic rheumatic disease: a qualitative study. Rheumatology
2017. Ingredients and change processes in occupational therapy for children: a grounded theory study. Scandinavian Journal of Occupational Therapy. 208-213 24.3
2017. Fathers' views and experiences of their own mental health during pregnancy and the first postnatal year: A qualitative interview study of men participating in the UK Born and Bred in Yorkshire (BaBY) cohort. BMC Pregnancy and Childbirth. 17
2017. Fetal growth restriction: Case definition & guidelines for data collection, analysis, and presentation of immunization safety data. Vaccine. 6546-6554 35.48 (Part A)
2017. EULAR / PReS standards and recommendations for the transitional care of young people with juvenile onset rheumatic diseases. Annals of the Rheumatic Diseases. 639-646 76.4
2017. A Pilot Randomized Controlled Trial of a Guided Self-Help Intervention to Manage Chronic Orofacial Pain. Journal of Oral & Facial Pain and Headache. 61-71 31.1
2017. An extra care community's perceived priorities for 'whole system' relationships: A Q-methodological study. Health and Social Care in the Community. 1169-1180 25.3
2017. From inactivity to becoming physically active: The experiences of behaviour change in people with serious mental illness. Mental Health and Physical Activity. 83-93 13
2017. Children and young people's views on a web-based application to support personal management of long-term conditions: A qualitative study. Child Care Health and Development. 126-132 43.1
2017. The experiences of Myocardial Infarction patients readmitted within six months of Primary Percutaneous Coronary Intervention. Journal of Clinical Nursing. 3511-3518 26.21-22
2017. Observational study of the development and evaluation of a fertility preservation patient decision aid for teenage and adult women diagnosed with cancer: The Cancer, Fertility and Me research protocol.. BMJ Open. 7.3
2017. Ethnography: challenges and opportunities. Evidence-Based Nursing. 98-100 20.4
2017. Prioritising young people's emotional health support needs through participatory research.. Journal of Psychiatric and Mental Health Nursing. 263-271 24.5
2017. Understanding the lived experience of women before and after fistula repair: A qualitative study in Kenya. BJOG: An International Journal of Obstetrics and Gynaecology. 503-510 124.3
2017. An Exploration of Comfort and Discomfort Amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment. Journal of Applied Research in Intellectual Disabilities. 727-742 30.4
2017. Ensuring app safety. Nursing Children and Young People. 17-17 29.3
2017. Involving young people with mental health problems in improving healthcare. Nursing Children and Young People. 23-23 29.4
2017. Sensitivity and attachment interventions in early childhood: A systematic review and meta-analysis. Infant Behavior and Development. 14-32 46
2017. Abstracts from the NIHR INVOLVE Conference 2017. Research Involvement and Engagement. 3.S1
2017. Desirable Components for a Customized, Home-Based, Digital Care-Management App for Children and Young People With Long-Term, Chronic Conditions: A Qualitative Exploration. Journal of Medical Internet Research. 19.7
2017. Collaborating with parents of children with chronic conditions and professionals to design, develop and pre-pilot PLAnT (the Parent Learning Needs and Preferences Assessment Tool). Journal of Pediatric Nursing. 90-97 35
2017. Women’s experiences of routine care during labor and childbirth and the influence of medicalization: A qualitative study from Iran. Midwifery. 63-70 53
2017. Person-centred phenomenology: service user experiences of exercise. Mental Health and Social Inclusion. 119-126 21.2
2017. The neglected vulva. Journal of Psychosomatic Obstetrics & Gynecology. 237-237 38.4
2017. There will be times when nurses can respond. Nursing Children and Young People. 27-27 29.3
2017. Student as researcher: rethinking how to make research methods interesting for students. Journal of Learning Development in Higher Education. 11
2017. Back to basics: Can unstructured camping promote wellbeing?. Therapeutic Communities. 38.1
2017. Abject spaces and mimicry: rethinking the embodied effects of spatial containment in trafficking for sexual exploitation. Cultural Geographies. 555-572 24.4
2017. Identifying people with a learning disability: an advanced search for general practice. British Journal of General Practice. 842-850 67.665
2017. Looking for cues – infant communication of hunger and satiation during milk feeding. Appetite. 74-82 108
2017. Mixed methods research: expanding the evidence base. Evidence-based nursing. 74-75 20.3
2017. Challenges and Opportunities in Researching Intimacy and Sexuality in Care Homes Accommodating Older People: a Feasibility Study. Journal of Advanced Nursing. 127-137 73.1
2017. Old(er) Care home residents and sexual/intimate citizenship. Ageing and Society. 243-265 37.2
2017. Development and feasibility testing of an oral hygiene intervention for stroke unit care. Gerodontology. 110-120 34.1
2017. Losing the child's voice and 'the captive mother': an inevitable legacy of family-centred care?. Evidence-based nursing. 67-69 20.3
2017. Collaborating to develop an online resource for parents. Nursing Children and Young People. 18-18 29.2
2017. EVERREST prospective study: a 6-year prospective study to define the clinical and biological characteristics of pregnancies affected by severe early onset fetal growth restriction. BMC Pregnancy and Childbirth. 17
2017. Web review: Arthur’s Place. Nursing Children and Young People. 16-16 29.4
2017. Web review: Your Rheum. Nursing Children and Young People. 16-16 29.4
2017. Making the Dream a Reality: The Evolving Landscape of Family-Focused Research Inspired by Empowered Patients and Their Families. Journal of Family Nursing. 307-318 23.3
2017. Parents managing childhood long-term conditions: longitudinal research is needed on online forums as sources of peer-to-peer information. British Journal of Dermatology. 1430-1431 176.6
2017. Editorial: Insights into Living with Kidney Disease. BioMed Research International Swallow VM; Puzantian H; Bronas UG; Krischock L (eds.). 2017
2017. Identifying professionals' needs in integrating electronic pain monitoring in community palliative care services: an interview study. Palliative Medicine. 661-670 31.7
2017. A comparison of job descriptions for nurse practitioners working in out‐of‐hours primary care services: implications for workforce planning, patients and nursing. Journal of Clinical Nursing. 707-716 26.5-6
2017. Undertaking research with children and young people.. Evidence-Based Nursing. 40-41 20.2
2017. A Framework for Describing the Influence of Service Organisation and Delivery on Participation in Fetal Anomaly Screening in England. Journal of Pregnancy. 1-13 2017
2017. GenerationR: Young people improving research across England.
2017. Understanding the treatment preferences of people with multiple sclerosis.
2017. Person with MS-focused decision making: Deconstructing key attributes of disease modifying therapies for people with relapsing remitting MS.
2017. RAiISE: Raising awareness of invisible illnesses in schools and education.
2017. Empowering young people and families to contribute to paediatric clinical research via the European YPAG network (eYPAGnet).
2017. Self- and shared-management interventions for children of primary school age (4 to 11 years old) with chronic conditions and their families: a review of the literature.
2017. Changing the way children, adolescents and their families are informed about clinical research through novel multimedia information resources.
2017. Self-management of chronic disease in childhood: the iSMART study.
2017. Young People�s, Parents�, and Professionals� Views on Required Components of Mobile Apps to Support Self-Management of Juvenile Arthritis: Qualitative Study (Preprint).
Darwin ZJ; Galdas P; Hinchcliff S; McGowan L; Littlewood E; McMillan D (2017) Promoting and protecting parents’ mental health through working in partnership: Qualitative interview study with fathers in the postnatal period International Confederation of Midwives Triennial Congress. Toronto, Canada
Stones S (2017) Shared experience of sitting on a clinical studies group (CSG) as a patient advocate Diabetes UK Clinical Studies Groups Lay and Health Care Professional Member Induction
Stones S (2017) The patient will see you now: a new era of empowered people living with health conditions Library and Information Health Network North West (LIHNN) / NW Health Care Libraries Unit (HCLU) Briefing
Stones S (2017) Self management of fibromyalgia from a patient perspective 18th EULAR Annual Congress of Rheumatology
Stones S (2017) When personal and professional experiences intersect: the path to success 1st European Patients’ Forum Summer Training Course for Young Patient Advocates
Stones S (2017) Social media and the path to empowerment: We’ve got the power! Carion Fenn Foundation Support Group Meeting
Stones S (2017) What is really bothering my patient? 24th European Paediatric Rheumatology Congress
Stones S (2017) Pain is real, but so is hope 16th European Network for Arthritis in Children (ENCA) Conference
Stones S (2017) Co-design, Co-produce, Co-deliver: Collaboration is the only viable path to success Translate External Advisory Board Meeting
Stones S (2017) Ensuring research really does involve the young person The Health Research Authority (HRA) course on the ethical issues of research involving children
Stones S (2017) Paving the way for a brighter future: Opportunities to involve young people in healthcare research across Greater Manchester The University of Manchester’s Child Health Research Network’s workshop on Greater Manchester devolution
Stones S (2017) Research – The best treatment I’ve ever had INVOLVE at 21 Conference
Stones S (2017) Breaking barriers, embracing expertise: When patients become people in research 6th Children’s Research Network for Ireland and Northern Ireland Conference
Stones S (2017) Social media and the path to health empowerment 6th Children’s Research Network for Ireland and Northern Ireland Conference
Stones S (2017) Your voice, your story, your life: You matter NIHR Manchester Clinical Research Facility Young Person’s Advisory Group Meeting
Stones S; Nikiphorou E; Unesi N (2017) The social media revolution: strategies to create and strengthen communication in a digital era 20th EULAR Annual European Conference of PARE
Stones S; Wright C (2017) The development of a toolkit for patient, parent and carer representatives involved in shaping clinical and health services research 20th EULAR Annual European Conference of PARE
Swallow V; Stones S (2017) Co-creating customised and reliable, home-based digital condition-management apps: a qualitative study involving children with long-term conditions Patient Information Forum Conference, Health Information for Children and Young People
van't Hoff W; Stones S (2017) Patients as partners – transforming the delivery of clinical research in the NHS 2nd Clinical Innovation and Partnering World 2017
2017. Self-management toolkit and delivery strategy for end-of-life pain: the mixed-methods feasibility study.
2017. 20th EULAR Annual European Conference of PARE report.
2017. Considering Risks and Benefits in Multiple Sclerosis Treatment Selection: Qualitative Data.
2016 & previous
2000. Renewing midwifery science and sensitivity in practice.
2004. Children's Surgical Nursing Vol 1: Principles and practices. Children's Surgical Nursing.
2008. Paediatric Neurosurgery for Nurses: evidence-based care for children and their families.
2003. Genetic screening: facilitating informed choices. In: Cooper; N D; Thomas; N (eds.) Nature Encyclopaedia of the Human Genome.
2009. Using decision making theory to inform clinical practice. In: Edwards A; Elwyn G (eds.) Shared decision-making in health care. 2nd.
2009. Using decision making theory to inform clinical practice. In: Elwyn G; Edwards A (eds.) Shared decision making - achieving evidence-based patient choice. 1st.
2012. Using Personal Stories in Patient Decision Aids.. In: Llewellyn-Thomas H; Volk RF (eds.) 2012 IPDAS Collaboration Background Document.
2004. The theoretical perspective of work based learning. In: Swallow V; Chalmers H; Miller J (eds.) Partnerships in Work based Learning.
2005. Patients as Teachers: Utilising Patients in Classroom Teaching. In: Using Patient Experience in Nurse Education.
2007. Active ingredients of the therapeutic relationship that promote client change. In: Gilbert P; Leahy RL (eds.) The Therapeutic Relationship in the Cognitive Behavioral Psychotherapies.
1998. Narrowing the gap: Social class age and ethnic difference in maternity outcomes. How can the community maternity services help?. In: MJ MGR (eds.) Community based maternity care.
2007. An Evaluation of a Postnatal Listening Service for Ethnic Minority Women. In: Richens Y (eds.) Challenges to Midwives.
1998. Antenatal care: what do women want?. In: Clement S (eds.) Psychological perspectives on pregnancy and childbirth.
1999. Dimensions and attributes of caring; women's perspectives. In: Hirst J (eds.) The new midwifery - science and sensitivity in practice.
2003. Identifying the Health Needs of Communities and Populations. In: Public Health and Society.
2006. Navigating the troubled waters of prenatal testing decisions. In: Webster A (eds.) Innovative Health Technologies: New Perspectives, Challenges and Change.
2004. Consultancy and collaboration for customised education. In: Swallow V; Chalmers H; Miller J (eds.) Partnerships in Work Based Learning.
2007. Imposing Boundaries upon the Female Body. In: Beckett C; Heathcote O; Macey M (eds.) Negotiating Boundaries? Identities, Sexualities, Diversities.
2005. Caring for a child with neurological dysfunction. In: Glasper A; Richardson J (eds.) A Textbook of Children's and Young People's Nursing.
2012. Children who have difficulty communicating. In: Lambert V; Long T; Kelleher D (eds.) Communication Skills for Child Health Nureses.
2010. Caring for the child with neurological disorder. In: A Textbook of Children's and Young People's Nursing.
2012. Spiritual care. In: Care in Nursing Principles, Values and Skills.
2010. The management of acute pain in children.. In: A Textbook of Children's and Young People's Nursing.
2004. Learning from the journey: a triangulated approach.
2004. Background & Introduction. In: Swallow V; Chalmers H; Miller J (eds.) Partnerships in Work Based Learning.
2007. Involving children, young people and parents in knowledge generation in health and social care research. In: Nolan M; Hanson E; Grant G; Keady J (eds.) User Participation Research in Health and Social Care.
2005. The management of acute pain in children. In: Glasper A; Richardson J (eds.) A Textbook of Children's and Young People's Nursing.
2009. Should patient stories be used in Decision Aids?. In: Elwyn G; Edwards A (eds.) Shared decision making - achieving evidence-based patient choice. 1st Edition.
2009. Should patient stories be used in decision aids. In: Edwards A; Elwyn G (eds.) Shared decision-making in health care. 2nd.
2004. Social and ethnic differences in attitudes to prenatal testing & termination of pregnancy. British Human Genetics Conference
2004. Attitudes towards prenatal testing and termination: views of mothers of children with genetic conditions. J REPROD INFANT PSYC
2016. EULAR Young PARE: The voice of young people with rheumatic diseases across Europe. 17th EULAR Annual European Congress of Rheumatology
2016. Progression: using educational games to enhance partograph skills in midwifery. BJOG-AN INTERNATIONAL JOURNAL OF OBSTETRICS AND GYNAECOLOGY
2006. Systematic review of web-based interventions designed to decrease alchohol consumption and/or prevent alcohol abuse. The 34th International Medical Advisory Group Conference
2011. Rhetoric Versus Reality: the role of research in deconstructing concepts of caring. RCN Annual International Nursing Research Conference
2007. Audit of Psychological Therapy Provision Across Leeds. Alliance of Counselling Agencies
2003. The Society for Infant and Reproductive Psychology 22nd annual conference. 11-13th September 2002, University of Sheffield.. The practising midwife
2016. ‘I just get on with it’: Fathers’ perceptions of paternal stress in the perinatal period. 35th Annual Conference of the Society for Reproductive and Infant Psychology
2000. The association between illness perception and other psychological variables after myocardial infarction. JOURNAL OF PSYCHOSOMATIC RESEARCH
2000. Depression in rheumatoid arthritis: A systematic review of the literature with meta-analysis. JOURNAL OF PSYCHOSOMATIC RESEARCH
2009. Depression that starts after myocardial infarction is predictive of subsequent cardiac mortality. PSYCHOLOGY & HEALTH
2002. The impact of depression on acute pain perception: A systematic review with meta-analysis. JOURNAL OF PSYCHOSOMATIC RESEARCH
2000. A comparison of psychological and physical characteristics in patients with one or more than one myocardial infarction. JOURNAL OF PSYCHOSOMATIC RESEARCH
2004. Evaluation of a postnatal listening service for Pakistani, Bangladeshi and Chinese women in the North of England. 14th International Conference of Psychosomatic Obstetrics and Gynaecology
2012. UPTAKE AND ADHERENCE TO EXERCISE AND PHYSICAL ACTIVITY IN DEVELOPED AND DEVELOPING COUNTRIES. JOURNAL OF AGING AND PHYSICAL ACTIVITY
2009. Breastfeeding, Best Feeding Project; Developing a blended learning approach to linking evidence to practice.. British Maternal and Fetal Medicine Society. 13th Annual Conference
2009. Enhancing students' learning experience; breastfeeding, best feeding. Networking for Education in Healthcare (NET09)
1999. Hospital Postnatal Care: a comparison of Pakistani and indigenous 'white' women's views. Journal of Reproductive and Infant Psychology
1998. Fetal health locus of control: a comparison of Pakistani and indigenous women. Annual Conference of the Society of Reproductive and Infant Psychology, Edinburgh
1998. Postnatal community care: the views of Pakistani and indigenous 'white' women. N&Y R&D Network for Nurses, Midwives and Health Visitors, Bradford
1999. Beauty and the Beast: a comparison of Pakistani and indigenous 'white' womens view of their postnatal hospital care. N&Y Region Network Conference for Nurses, Midwives and Health Visitors, Leeds
1999. Hospital postnatal care: a comparison of Pakistani and indigenous 'white' women's views. Annual Conference at the Society of Reproductive and Infant Psychology, Hatfield
2007. The Development & Delivery of a New Module for Healthcare Professionals’. 7th Learning and Teaching Conference
2006. Better not to be born? UK 'white' and Pakistani mothers' views on why they might consider termination of pregnancy for fetal abnormality. J REPROD INFANT PSYC
2003. Social and ethnic differences in attitudes and consent to prenatal testing. J REPROD INFANT PSYC
2002. Social and ethnic differences in attitudes and consent to prenatal testing. European Meeting on Psychosocial Aspects of Genetics, Strasbourg, France
2004. Women's attitudes to prenatal testing and termination of pregnancy across a range of conditions: patterns and explanations. European Meeting on Psychosocial Aspects of Genetics, Munich, Germany
2002. Social and ethnic differences in attitudes and consent to prenatal testing. European-Society-of-Human-Genetics European Human Genetics Conference in Conjuction With European Meeting on Psychosocial Aspects of Genetics
2012. An exploration of midwives’ attitudes to giving body weight related advice to obese pregnant women with a Body Mass Index (BMI) of 30 or more. 32nd Annual Society for Reproductive & Infant Psuchology Conference
2007. Attitudes of different social and ethnic groups towards prenatal testing. International Genetic Healthcare Conference
1998. Fetal health locus of control: a comparison of Pakistani and indigenous 'white' women's views. Journal of Reproductive and Infant Psychology
2014. Does insight into midwives’ confidence, training-needs and experiences of caring for ill and deteriorating women during childbirth, help us understand women’s experiences of childbirth? 34th Annual Conference of the Society for Reproductive and Infant Psychology. 34th Annual Conference of the Society for Reproductive and Infant Psychology (SRIP)
2011. Women’s willingness and capability in completing a health literacy questionnaire post birth. International Health Literacy Conference: Health Literacy: a public concern?
2011. Women’s willingness to be observed during the first stage of labour. 31at Annual International Conference of the Society for Reproductive and Infant Psychology
2010. Knowledge diffusion: Teaching informed by research and vice versa. 21st International Networking Education in Healthcare Conference
2012. Older adults' perceptions of the influence of exercise instructors in the uptake and adherence of exercise. JOURNAL OF AGING AND PHYSICAL ACTIVITY
2012. Attitudes and beliefs associated with uptake and maintenance of physical activity among South Asian older adults aged 60-70. JOURNAL OF AGING AND PHYSICAL ACTIVITY
2012. CULTURE, ETHNICITY & PHYSICAL ACTIVITY: PROMOTING ACTIVE AGEING IN OLDER PEOPLE FROM BLACK & MINORITY ETHNIC GROUPS. JOURNAL OF AGING AND PHYSICAL ACTIVITY
2014. Experience of a mouth care complex intervention for stroke patients: a feasibility study.. British Association of Stroke Physicians Conference 2014
2015. Staff’s views of delivering patient-led therapy during inpatient stroke rehabilitation: A focus group study with lesson for trial fidelity. SRR Winter Meeting
2015. A Mixed methods Study Investigating Readmission, Symptom Attribution and Psychological Health in Primary Percutaneous Coronary Intervention (PPCI) Patients. BCS annual conference, ‘Hearts and Genes’
2004. Choosing between outpatient and daycase gynaecological care: A qualitative survey of women's preferences.. 51st Annual Meeting of the Society-for-Gynecologic-Investigation
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