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Thomas Osborne

Thomas Osborne

Profile

Since January 2024, I have been the EUSTAR Project Manager. The European Scleroderma Trials and Research Group (EUSTAR) is an international network of over 200 systemic sclerosis centres worldwide, operating under the World Scleroderma Foundation. EUSTAR collects longitudinal real-world data from more than 27,000 patients, supporting clinically meaningful research and long-term outcome evaluation in this rare disease. I lead the operational delivery of international research projects using the EUSTAR Registry, coordinating a multidisciplinary delivery team and acting as the primary operational liaison with industry and academic partners. I am responsible for managing projects from inception through to analysis, reporting, and dissemination, overseeing contracts and agreements with collaborators, and supporting centre engagement, database management, and the collection of high-quality, complete data. EUSTAR’s work has shaped clinical practice, generated over 100 peer-reviewed publications, and informed research that directly improves treatment, quality of life, and long-term outcomes for patients with systemic sclerosis.

Prior to this, in July 2022, I joined the University of Leeds as Project Manager for the £3.4 million NIHR-funded LOCOMOTION study, a multi-centre programme involving 20 partner organisations across the NHS, academia, and industry, which aimed to create a ‘gold standard’ approach to treating Long COVID.

Earlier in my career, I held roles at Leeds Community Healthcare NHS Trust, including Research Feasibility and Data Coordinator and a secondment as Research Development Manager, where I developed my expertise in research governance, study setup, data management, and stakeholder engagement. I began my career as an Audit Facilitator at Manchester NHS Foundation Trust, managing audit and quality improvement projects, which provided a strong foundation in data collection, analysis, and reporting.

I hold a BSc in Sport Science with Management (First Class Honours) and an MSc in Exercise Physiology (Distinction) from Loughborough University, where I was awarded the Yakult Prize for achieving the highest grade in my MSc cohort.

Responsibilities

  • EUSTAR Project Manager

Qualifications

  • MSc Exercise Physiology
  • BSc Sports Science with Management

Research groups and institutes

  • Leeds Institute of Rheumatic and Musculoskeletal Medicine