HALO study: Haematology Lived Experience and Outcomes

Description

Funded by Leeds Hospital Charity

HALO is a research study looking at people who were diagnosed with a Sickle Cell Disorder, Beta Thalassemia, acute Lymphoblastic or acute Myeloid Leukaemia in childhood and the long-term effects of that diagnosis and treatment on their life.
•    Study aims are
o    To identify how these conditions and their treatment might impact on individuals’ long-term health and quality of life. 
o    Identify unmet needs and health inequalities. 
o    Use this information to direct where improvements in care and support are needed.
o    Highlight how these can improve outcomes. 

Other content

Links to Sickle Cell Society; UK Thalassemia Society; Leeds Hospitals Charity; Leeds NIHR BRC

Impact

Forecast: link in with partner organisations and pre-set events in haemoglobinopathy and related calendars to promote study and support engagement