- Start date: October - 2018
- End date: January - 2023
- Partners and collaborators:
The Research team is led by Professor Andrew Clegg at the AUECR, and includes experts from the Clinical Trials Research Unit (CTRU) at Leeds Institute of Clinical Trials Research (LICTR), the Academic Unit of Health Economics at the Leeds Institute of Health Sciences (LIHS), the Academic Unit of Primary Care at LIHS, and the University of Leeds School of Psychology.
Together they are working in partnership with Age UK, the University of Manchester, a GP representative from Bradford District and City Clinical Commissioning Groups, TPP and members of the public.
- Primary investigator: Professor Andrew Clegg
- Co-investigators: John Young, Rebecca Hawkins, Claire Hulme, Robbie Foy, Robert West, Bonita Cundill, Suzanne Hartley, Amanda Farrin, Rebecca Lawton, Peter Bower, Neil Pendleton, Jo-Anna Holmes, Sara Humphrey
Frailty is a condition of increased vulnerability to major changes in health as a result of seemingly small problems, such as an infection or new medication. It is common in older age, affecting around 10% of people aged over 65, and develops because as we get older our bodies change and can lose their inbuilt reserves, for example we lose muscle strength. People with frailty are at increased risk of falls, disability, loneliness, hospitalisation and care home admission. These problems can reduce quality of life and are costly for the NHS and social care.
We have received £2.7 million of funding from the National Institute for Health Research to develop and test a new type of care which aims to improve the quality of life for older people with frailty by giving them choice and control over decisions about their own health and wellbeing.
The new type of care, called personalised care planning, is designed to improve self-management skills and help older people with frailty to improve their wellbeing and thrive with the support of their community. This approach also aims to improve coordination of GP, voluntary sector and social care services and increase the social networks of older people with frailty.
The overall aim of this five year research programme is to find out whether personalised care planning improves quality of life for older people living with frailty, and is cost-effective. The team plan to identify which people should receive personalised care planning by studying how quality of life and use of health and social care services changes as frailty develops. They will also study the existing Age UK Personalised Integrated Care Service, designed to provide person-centred care planning for older people, to see how it might be improved, in preparation for a large trial to test effectiveness, involving approximately 2,000 older people across Yorkshire & Humber and Greater Manchester.
The generation of robust research evidence on the clinical and cost-effectiveness of PCP for older people with frailty as core users of NHS and social care services has potential for considerable impact at an individual and societal level.
The alignment of contemporary national policy with robust research evidence and implementation tools, including the widespread availability of the eFI, means that we are in a strong position to realise NHS benefits in a short timescale.