Research project
BLISS: Blood Cancer Long-term follow-up using Integrated healthcare SystemS data
- Start date: 1 May 2025
- End date: 30 April 2030
- Partners and collaborators: Blood Cancer UK
- Primary investigator: 00953310
- Co-investigators: Co-Chief Investigator: Dr Lesley Smith Prof Gordon Cook Prof Sarah Brown Anna Hockaday Sadie Roberts Catherine Olivier Kara-Louise Royle
- External co-investigators: Dr Chris Parrish Dr Katie Spencer Shelagh Thompson William Cragg Nathan Ferriday
Description
|
The BLISS Project The BLISS project will link the data from the 10 myeloma clinical trials (detailed below) with healthcare systems data to make sure it is accurate and can be used for future research. •Myeloma X •MUKOne •MUKFour •MUKSix •MUKEight •Myeloma XI •MUKThree •MUK Five •MUKSeven •MUKTwelve The BLISS platform will help to answer important research questions including:
Healthcare Systems Data The NHS collects data about patients as part of normal day-to-day running of healthcare services (e.g. hospital appointments and admissions, and the reasons for these). Some of this is coded and made available to researchers through a central process. This is called ‘Healthcare Systems Data’. We will also use it to answer important research questions including whether treatments have had a long-term benefit, how frailty is assessed, how bone disease is treated and if trials represent all patients who get myeloma Data Linkage At the time of recruitment for the trials listed we did not ask for consent for linkage to data held by national data providers (such as NHS England). We have permission from the Health Research Authority, on the advice of the Confidentiality Advisory Group (CAG), to obtain follow-up information. This involves sharing a limited amount of personal data (NHS Number, date of birth and sex) with NHS England to obtain linked Healthcare Systems Data. You can find out more about the CAG from If you or a family member took part in one of the listed trials and would like to know more, or wish to opt out of the data linkage, please visit the BLISS website at https://ctru.leeds.ac.uk/bliss/ |