Research project
No research about us, without us. Removing research barriers for people with learning disabilities
- Start date: 1 June 2023
- End date: 30 November 2025
- Funder: National Institute for Health and Care Research (NIHR)
- Value: £139,668
- Partners and collaborators: East Suffolk and North Essex NHS Foundation Trust, National Development Team for Inclusion, Learning Disability England, Speak Up Self-Advocacy, Thinklusive, University of Glasgow, Cardiff University, University College London, University of Dundee, Health Innovation East
- Primary investigator: Dr Amy M Russell
- External co-investigators: Gary Bourlet, Learning Disability England (JOINT PI), Jyothika Kumar, Katharine Richardson, Rachel Royston, Susan Buell, Vaso Totsika, Victoria Shepherd, Geoff Doncaster, Maximilian Clark, Paul Charlton, Victoria Farnsworth, Jodie Bradley, Angela Henderson, Anna Marriott, Samantha Clark & Deborah Cairns
Description
The National Institute for Health and Care Research offered research teams, charity organisations and community groups funding to develop partnerships together. These research partnerships came together to tackle the barriers preventing research happening in certain communities.
Our community is the learning disability community. We have connected self-advocates with a learning disability, support workers, national learning disability organisations, accessible communication experts, professional researchers, and the National Health Service to examine the barriers stopping research from including people with a learning disability. We explored ways of overcoming some of those barriers and made recommendations for future research. We agreed how best to work together and then tested if our way of working together felt successful for everyone.
Downloads
Research and Development Conference Poster
Project website
https://www.learningdisabilityengland.org.uk/no-research-about-us-without-us